Author: Veerapandiyan, Aravindhan; Connolly, Anne M.; Finkel, Richard S.; Arya, Kapil; Mathews, Katherine D.; Smith, Edward C.; Castro, Diana; Butterfield, Russell J.; Parsons, Julie A.; Servais, Laurent; Kuntz, Nancy; Rao, Vamshi K.; Brandsema, John F.; Mercuri, Eugenio; Ciafaloni, Emma
Title: Spinal muscular atrophy care in the COVIDâ€19 pandemic era Cord-id: pk7sx81r Document date: 2020_5_3
ID: pk7sx81r
Snippet: The coronavirus disease 2019 (COVIDâ€19) pandemic has resulted in reorganization of healthcare settings affecting the delivery of clinical care to patients with spinal muscular atrophy (SMA). There is a concern that patients with SMA may be at increased risk of manifesting severe symptoms of COVIDâ€19. Currently approved therapies for SMA improve survival and motor function; however, their delivery requires an increased exposure to the health system and a dedicated healthcare team. In this stu
Document: The coronavirus disease 2019 (COVIDâ€19) pandemic has resulted in reorganization of healthcare settings affecting the delivery of clinical care to patients with spinal muscular atrophy (SMA). There is a concern that patients with SMA may be at increased risk of manifesting severe symptoms of COVIDâ€19. Currently approved therapies for SMA improve survival and motor function; however, their delivery requires an increased exposure to the health system and a dedicated healthcare team. In this study, we discuss consensus recommendations pertaining to care of SMA patients during the pandemic. We highlight that SMA treatments should not be perceived as elective. Decisions regarding the delay of treatments should be made with consideration of the potential risks of COVIDâ€19 exposure and the risk of that delay. We emphasize the importance of collaborative treatment decisions between the patient, family, and healthcare provider, considering any geographic†or institutionâ€specific policies and precautions for COVIDâ€19.
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