Data Privacy and Confidentiality from the Perspectives of General Public and Health Care Providers in Jordan.

Bardaweel, Sanaa K; AlMuhaissen, Suha A; Alkurdi, Nujood H; Tayyem, Humzeh H

OBJECTIVES To assess knowledge, attitude, and beliefs about the right to privacy and confidentiality from the viewpoints of the general public (GP) and the health system (HS) professionals in Jordan METHODS: An online-based cross-sectional descriptive questionnaire was distributed across Jordan during May & June of 2020. A total number of 388 respondents filled in the online survey assessing their knowledge, attitude, and opinion about right to privacy and confidentiality being practiced during the professional contact between the patients and their health care providers. RESULTS Among the respondents, 44 (11.3%) participants were health care professionals, and 344 (88.6%) participants were from the general public. Most of the respondents were females (69.6%) and the mean age was about 27 years. The main sources of knowledge about patients' right to privacy and confidentiality regulations were from school and media platforms. Only 18.1% of the GP respondents reported that they have been introduced to patients' right to privacy and confidentiality regulations by medical staff during professional contact. 97.4% of GP respondents and 93.2% of HS professionals valued patients' right to assure the level of their data privacy prior to receiving medical care. Significantly (p=0.012) higher percentage (93%) of GP respondents believed that there should be no prioritization of privacy based on the gender of the patient. Most of GP respondents had concerns about electronic medical records being violated and their data being reached by unauthorized parties. CONCLUSION The general public and health system professionals in Jordan are familiar with the patients' right to privacy and confidentiality regulations. More efforts must be put in place to inform patients about their rights to privacy and confidentiality practices when they are in professional contact with their healthcare providers. In addition, rules, laws, and legal agreements must be effectively established and monitored to prevent privacy violations.