Selected article for: "ALS lateral sclerosis and lateral sclerosis"

Author: Ambrosino, Nicolino; Casaburi, Richard; Chetta, Alfredo; Clini, Enrico; Donner, Claudio F.; Dreher, Michael; Goldstein, Roger; Jubran, Amal; Nici, Linda; Owen, Caroline A.; Rochester, Carolyn; Tobin, Martin J.; Vagheggini, Guido; Vitacca, Michele; ZuWallack, Richard
Title: 8(th) International conference on management and rehabilitation of chronic respiratory failure: the long summaries – Part 3
  • Document date: 2015_10_6
  • ID: 08fkra10_127
    Snippet: Communication with patients and families about EOL issues is an important component of proper medical care that is often neglected in the training of clinicians. Although direct studies of health care provider interaction in COPD in this setting are not readily available, Vitacca et al. [123] showed how to communicate bad news to caregivers of patients with amyotrophic lateral sclerosis (ALS). In particular, caregivers require major assistance du.....
    Document: Communication with patients and families about EOL issues is an important component of proper medical care that is often neglected in the training of clinicians. Although direct studies of health care provider interaction in COPD in this setting are not readily available, Vitacca et al. [123] showed how to communicate bad news to caregivers of patients with amyotrophic lateral sclerosis (ALS). In particular, caregivers require major assistance during the delicate times of discussing advance care planning and directives and critical treatments decisions. Clinicians are, therefore, an important target group for education on this type of communication. The Calgary-Cambridge model for medical consultations and the SPIKES (Setting up, Perception, Invitation, Knowledge, Emotions, Strategy and Summary) [124] for breaking "bad news" provides examples of consultation guides that integrate patient agenda with biomedical issues. Communication of advance care planning, defined as an ongoing discussion among patients and family members may be a more effective mean to meet patients' wishes.

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