Development and Validation of the Korean Version of the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire for Patients with Non-muscle Invasive Bladder Cancer: EORTC QLQ-NMIBC24

Park, Jinsung; Shin, Dong Wook; Kim, Tae-Hwan; Jung, Seung Il; Nam, Jong Kil; Park, Seung Chol; Hong, Sungwoo; Jung, Jae Hung; Kim, Hongwook; Kim, Won Tae

High response rate for non-sexual scales, sexual function scale, and male sexual problem scale indicate that items of the questionnaire are easy to understand and acceptable to Korean patients. Low response rate to sexual intimacy scale, risk of contaminating a partner scale, and sexual enjoyment scale reflects that many patients were not actively engaged in sexual activity. This could be largely explained by the old age of the BC patients but also reflect loss of sexual interest and fear of contaminating partner after the BC diagnosis and early survivorship period after treatment. It was difficult to determine the true missing rate for those three sexual items, because less than half of patients reported that they had been sexually active during the study period. If limited to patients who reported at least a little sexual activity (item 48) at the each time point, completion rate was around 75% (Table 2) . Our finding is also consistent with the original European validation study [8] , in which around half of patients reported at least a little sexual activity, and completion rates for the sexual scales and items was > 75% if limited to those who have any sexual activity. High missing rate of female sexual problem scale is in line with our previous experience with validation of Korean version of EORTC QLQ CX24 (cervical cancer) module [12] , which revealed relatively low compliance with regard to sexuality-related scales (around 40% of missing rates). Comparison between visit 2 and visit 3.